Book Review: The Reason I Jump

English Book Cover

Japanese Book Cover

Well, I seem to be on a roll.

So let's get the disclaimers out of the way, shall we?

I have no contact with the author or the publishers of the book I am about to review.  To alleviate fears of bias, let me state that I read this book through a really good friend who shared her copy with me.

And to again quote from previous reviews, "I will state that all that will be written from here on are my personal opinions and are not, in any way, meant to be taken as gospel truth or medical advice. I am not a medical practitioner or a child developmental expert. I am just a former teacher, a simple mother, a possibly autistic woman with a child who has autism."

We're clear?  Okay, let's do this.

Rude Remarks while Parenting a Special Needs Child

I had just read this article that was featured in The Sensory Spectrum, and it made me remember a similar incident that happened not too long ago.

I remember when, back in Hong Kong, I had to leave R with his dad for a little while. I wasn't feeling very well since I had eaten something that didn't sit well with me so I had to go the bathroom. R, on the other hand, was wired up, wouldn't settle, and it was way past his nap time. He couldn't sleep, simply because we were out and about.

I was having a hard time carrying and taking him around as the food poisoning was causing me to weaken, and even became feverish at one point in the day. So my husband and I decided to stop at a Starbucks coffee shop so he could get a drink for us, as well as get R calm for nap. I prepared a bottle of milk for him, laid him down on the sofa, and proceeded to the bathroom.

Traveling with an SPD Kid

In the years we've had with R, we've had to travel quite a bit, whether it's out of town or overseas.  And even before the SPD diagnosis, we had discovered a few little things about him that made traveling a bit difficult.  R was exhibiting vestibular seeking methods even as early as a year old, when he would always want to go out no matter how tired we were.  He was also quite picky over a lot of foods and we needed to make an effort to seek out the food that he would actually eat.

The SPD diagnosis made a few things clearer to us in terms of his behaviors, and we did learn to adjust to his needs when traveling.  Not saying we're experts, but we've had a few experiences of R having a meltdown while we were overseas or out of town.  Needless to say, it's hard because when you're not in familiar environment, you need to get really creative.

I found a few posts online with tips for traveling with SPD.  You can read them at:

• Travel Tips for Parents of Children with Sensory Integration Issues
• Traveling with a Sensory Seeking Child
• 8 Tips for Flying with a Child with Sensory Processing Disorder
• Travel tips for kids with Sensory Processing Disorder

As for me, here are my tips for traveling with an SPD Kid.

SPD, the Interoceptive Sense and Toileting

Just when I thought I had nothing more to say about SPD, somehow R ends up manifesting this in yet another way.

It all started when we took R out for a day and ended up having a major meltdown in the mall.  The trigger, the toilet flush.

Now, R has been relatively easy to potty train considering he has SPD.  I've read of many parents who had such a hard time with this, even without the sensory issues.  But in R's case, his love for the toilet flushing and his dislike of wet clothes actually ended up stimulating him to use the toilet more and the diapers less.

But let's go back to the very beginning in terms of his toilet habits, shall we?  And no, please don't think I'm shaming him.  I actually want this to be a teaching moment, for me and my hubby, for R, and for anyone going through something similar.

So, let's discuss!

The SPD Kid in School

This post was featured in The Sensory Spectrum on March 26, 2016.

How does SPD affect a child's behavior in school?

As I used to teach elementary and pre-school, I've seen many behaviors that are quickly labelled as "naughty" or "disobedient".  This is an unfair label due to the fact that SPD kids cannot control themselves when they are overloaded with sensory inputs and having a sensory meltdown.  As such, I feel that many of these kids go through their school years with a reputation that no one really likes to carry.

In my experience growing up unknowingly with SPD, it was very common for my classmates and teachers to label me as "weird" due to my little quirks.  I would be the girl everyone would see walking all over the school during recess and/or lunch.

I'm not kidding when I said all over the school, I really mean all over the school.

There were times I didn't just walk.  I ran.

Tantrum and Meltdown Examples

Can you share how you learned to differentiate a tantrum from a meltdown with R?

R is quite an expressive kid, and even with his speech delay, he will let you know if he's upset.  We were able to tell the difference between a tantrum and a meltdown really by finding out the source of his distress.

Tantrums vs Sensory Meltdowns

Okay, so you mentioned about how children respond when overwhelmed with sensory issues.  How is that different from normal toddler tantrums?

That is an excellent question that hubby and I also at one point asked R's OT.  True, toddlers, and even pre-school aged children throw tantrums when they don't get their way.  Both look very similar because both involve an upset child.