Things I am Learning as a Special Needs Parent

In any journey in life, there will always be lessons and takeaways we can glean.  Our experiences have always been a teacher in our lives, some even say the best teacher we could ever have.  I don't think this journey with R is any different. There's so much I have learned, so much I am still learning, and so much more I have yet to learn.

I credit my training and experience as a teacher for many of what I know about child-raising and teaching.  I credit the experience I had in caring for my baby brother (of course under the watchful eyes of my parents and little bro's caregivers) for giving me the opportunity to learn the skills on baby care.

I didn't go into parenting blind, but I don't think I was fully prepared for parenting either, much less being the parent of a special needs kid.

So here's what I have learned, and most likely still learning, about being a special needs parent.

SPD and Family

In the months since my last post, a whole bunch of things have happened.

But before I get into that, I'm ecstatic to update on R's development.  In discovering that he liked being around other kids during VBS, and as a result started babbling more, we have since enrolled him in a local preschool.  It's quite a non-traditional preschool, and though I am not giving up on homeschooling yet, I'm quite happy seeing R enjoy himself in school.  As a result, he has become a whole lot more chatty and we're seeing a lot more attempts by him to communicate with us verbally.

If you'd like to know more about how I suggest advocating for your SPD kid in school, you may read my previous post on the subject matter.

And now for the topic at hand.

SPD and Language Delays

Yesterday, R had an awesome session of speech therapy, and we've been seeing a whole lot more improvements of him attempting to speak and experiment with sounds.  Last night, I caught him singing ABC to himself.  He never did that before.  And I'm really excited!  He could be conversing with us soon and I can't wait!

Then it got me thinking.  A lot of people have often asked me how SPD affected R's language development, and how it has caused him such a delay.  So I thought I'd do a bit of research and share what I've learned.

In my previous post I talked about how essential pretend play is to language development.  I had also discussed even earlier on the link between SPD with oral motor problems, orofacial apraxia, and even Childhood Apraxia of Speech (CAS).

Today we will discuss about the usual language development of children and how SPD can affect this.

So let's jump right in!

SPD and Pretend Play

For his birthday last year, R's godfather, my husband's best friend, got him the LeapReader in hopes that he will start reading and writing soon.  R loved it and started using it on the books that came with the present.  His interest in the books waned soon, but strangely enough, his interest in the pen didn't.

R has also been taking notice of the things my husband and I do, especially when we talk on the phone.  He even insists on being the one to hang up the calls on our cellphones.  So I wasn't too surprised when he started putting the pen to his ears, turning it on and off, then waving to it with a "buh-buh" (his word for "bye bye" which he has pretty much learned how to say for quite some time).

However, he totally surprised me last night when he was playing with the LeapReader.  He put it to his ear, and started to babble, as though he was making conversation.  This went on for a good 3 minutes.  And then, as if to end the conversation, I heard him say, "Ok.  Buh-buh."

It took a solid ten seconds to dawn on me that he was pretending.  He was actually pretending!

I know what you're thinking.  Why is this such a big deal?

Remember one of my older posts where I mentioned the 5 signs that a child is about to talk?  Well, I mentioned there that R only exhibits 4 of the 5.  The fifth is symbolic or pretend play.  Apparently, pretend play is an essential developmental milestone for a child to learn how to speak.

So how does pretend play affect speech?

Rude Remarks while Parenting a Special Needs Child

I had just read this article that was featured in The Sensory Spectrum, and it made me remember a similar incident that happened not too long ago.

I remember when, back in Hong Kong, I had to leave R with his dad for a little while. I wasn't feeling very well since I had eaten something that didn't sit well with me so I had to go the bathroom. R, on the other hand, was wired up, wouldn't settle, and it was way past his nap time. He couldn't sleep, simply because we were out and about.

I was having a hard time carrying and taking him around as the food poisoning was causing me to weaken, and even became feverish at one point in the day. So my husband and I decided to stop at a Starbucks coffee shop so he could get a drink for us, as well as get R calm for nap. I prepared a bottle of milk for him, laid him down on the sofa, and proceeded to the bathroom.

Homeschooling with SPD

Because it's been a while since I posted...

Merry Christmas!

Happy New Year!

新年快樂!

Now that it's out of the way... On to the topic at hand.

R and I have been homeschooling now for at least 18 weeks, not counting the weeks he had for Christmas and New Year breaks.  Over time we've done a few projects, some activities, and a lot of learning, mostly on my part.